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1) Paa
Publisher
Reliance Big Pictures
Pub. Date
2010
Language
Hindi
Description
Auro is an intelligent, witty 13-year-old boy with an extremely rare genetic defect that causes accelerated aging. He suffers from a progeria like syndrome. Mentally he is 13, very normal, but physically he looks five times older. In spite of his condition, Auro is a very happy boy. He lives with his mother Vidya, who is a gynecologist, and his father Amol Arte, a young, progressive, and full of ideals politician.
Author
Publisher
Riverhead Books
Pub. Date
2023.
Language
English
Description
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic conditionNiemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors...
Author
Publisher
Houghton Mifflin
Pub. Date
2003.
Language
English
Description
Specializing in a rare disease that causes children to age drastically, Dr. Henry Moss is confronted with an ethical dilemma when he meets a family whose two children are affected in dramatically different ways by the same disease.
Author
Publisher
Penguin Press
Pub. Date
2020.
Language
English
Description
"The author's daughter was born with a very rare genetic syndrome and faced a daunting prognosis: she would be a fraction of normal size, have innumerable physical and mental difficulties and likely a shortened lifespan. Now, at age eight she is attending standard public school classes. This is the story of her family's journey"--
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